Three More Tries

Three more attempts to draw Josie's blood, today, were not successful. This time we went to Peyton Manning's Children's Hospital because I learned that if they are not able to get it within two tries, then they will allow the ER to do it. This was promising because the ER is able to draw from somewhere other than the arm or hand (which is the only places the lab will draw from). Josie had two tries, one on each arm, and then the ER nurse tried from her foot. The ER nurse explained that they are able find a vein but as soon as they stick it, Josie tenses up so much that the blood will just not flow. Josie does scream and fight (it takes three of us holding her with all our might) so I can see why it's happening. The vein actually blew in her foot which sent blood everywhere...not something a Mommy wants to see on her baby! The ER nurse said she didn't think we should try again without sedating Josie first, so that she would be relaxed enough to let the blood flow. However, they were not allowed to do it there without an order from Josie's doctor first.
I called her neurologist from the hospital and she said that although sedation was a possibility, she wanted us to wait and give her a chance to confer with a Metabolic Disorder Specialist first. She was going to review everything with him and see if he believed that it is truly imperative we get Josie tested for this right away. It is possible that we could wait and just see if any more symptoms of this disorder show up. She also suggested that we may do another urinalysis and see if we get any different results. She said she will call be back tomorrow with our next step.
So, it didn't work out today but we are not giving up! Thank you so much, everyone, for all the kind words and support!